Last night I had a dream, and when I woke up, I remembered it vividly. I was accurately telling someone, “Only 1 in 100,000 people have this kind of tumor, and only 5% of them are malignant. So what are the odds that my tumor is malignant? Miniscule. But mine is. And so I can only believe that I am going through this for a reason.”

On Monday I got the stitches out from my Paraganglioma surgery and also learned that the tumor had metastasized to the surrounded lymph nodes (which had been removed during surgery) and is classified as malignant. I’ll be going to see an oncologist to have further scans done to see if the Paraganglioma has metastasized to any other areas of my body, and also to discuss radiation treatment which I’ll probably be undergoing next month. Like I was explaining in my dream, these are so rare, there’s not many examples of how patients with cancerous Paragangliomas have responded to various treatment, but we think the outlook is pretty good, and I’ve already had my surgery, so at least I don’t have that to be worried about any more.

It’s funny how life works, though. On Monday, while everyone else was playing April Fool’s jokes on each other, I was staring at my grandma laying in her casket and contemplating how to tell my family I have cancer as we all gathered together after Grandma’s unexpected death. I just wanted someone to shout “April Fools!” and for Grandma to sit up in her coffin and for me to not have cancer any more. Though really, in the midst of it all, I definitely felt the peace of God and the prayers of so many people who love me. I just feel hope, and an urgency to live out and enjoy my life with Phil and little Lucy. Like I said before, not one day is guaranteed to any of us, and stepping into a car to drive down the highway is often more dangerous than facing disease or surgery. Not that we should live life with the gloomy expectation of death, but we shouldn’t waste a day, or put our hope in materialistic nonsense. Tragedy and sickness are never welcome, but the realizations they bring about certainly are!

I’m feeling pretty good about things now. The worst part is telling people, and I often feel the urge to comfort those I tell, and assure them that I will be alright. I’m sure radiation will be a low point in my life, but I’m thankful for the healthcare I can receive, and for all of my family and friends who will be around to help. Things might not be as busy with this blog, because there are only so many hours in a day, and I’d like to reevaluate how to use them, and how much time I spend working on things for very little financial compensation. Little Lucy is in the other room whining for me right now, so I think I’ll go snuggle with her for a bit and thank God for the blessings he’s given me!

top photo: Andrew Junge, Pandora’s Box #13, 2009

Hello, dear friends! Last Tuesday I went into surgery as planned, and boy what an experience it has been. My fears were not unfounded, and the procedure ended up being much more involved than we had hoped. My surgeons at The Cleveland Clinic, who are  a couple of the main guys in the world for this type of surgery, said I “win the prize for being the most difficult tumor to remove.” That was shocking to hear, since the size of the tumor was pretty average and appeared in the MRI to be manageable. I guess it’s really not the size that counts, but how much of its surrounds it has invaded. They had to do repair work to my arteries, and I ended up being under anesthesia much longer than we all expected- about six hours total. As I type this now, I’m staring at the keyboard, because my eyes can’t quite bear to look at the screen, and it’s already been six days since going under.

I am so thankful for life right now, but it’s a bit difficult to feel cheery when in actuality I feel miserable. I am so thankful for such skilled surgeons and for the insurance that has made all of this financially bearable. I am thankful that my nerves are still in tact and I will still be able to talk and swallow, but right now both of those are very difficult for me, and in combination with not being able to strain (I have sutures both on my arteries and on the outside of my neck) and not being able to talk, my interactions with Lucy are pretty limited right now. Talk about frustrating. My breast milk supply took a huge dive, and I’m dealing with the emotions of feeling like I am failing at providing for Lucy and losing my intimacy with her and also the emotions of waiting for pathology reports and wondering what life will be like if the tumor has metastasized to other areas of my body.

Right now I’m just focusing on getting healthy and enjoying lots of episodes of Foyle’s War on Netflix. I have to wait on my tumor’s pathology report and am going to have more body scans to rule out or confirm other tumors or cancer. The doctors said they are a bit more concerned about that than they were before surgery, because of my tumor’s invasiveness. But I’m trying not to think about that and keeping my head up above the cloud of gloom that sinks down on me every now and then. I had hoped to be two weeks ahead with blog posts before my surgery, but when my computer died, I lost one of those weeks and was only able to get one week ahead. I know you guys aren’t hanging around with baited breath waiting for me to update, but keeping this place lively is important to me, so hopefully I can get back to my regularly scheduled blogging. But for now, I’m just taking it easy. Thanks for all of your love and support!

So often, we waste our energy on looking to the future- what we’ll have tomorrow, the projects we’ll embark upon, the people we’d like to become. We often neglect not only to enjoy where we are now, but also to reflect on who we were. And when it comes to fashion, it’s really a pragmatic way to live.

I love to think about fun little things I can add to my wardrobe to make getting dressed more fun, but it’s too easy to lose interest in what I already own, or outfits that I loved one day, and completely forgot about the next. This Spring I want to be inspired by outfits I’ve worn in the past, and recycle a lot of the looks I loved years ago. Whenever I look back like this, I realize that often my favorite outfits are quite simple, inexpensive, and still hanging out in my closet, ready to be reloved. So, why not think about putting your wallet away, and digging deep in your closet to rekindle some old loves? Your budget will thank you!

(Psst… You can check out more of my past outfits here!)